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- “A Positive Attitude Will Lead To Positive Results”
Jaliyah’s Journey with Erb’s Palsy Before Jaliyah was born I never heard anything about Erb's Palsy. On October 24, 2006 that all changed. During delivery the doctors caring for me didn't take the necessary precautions to protect my baby, because of this Jaliyah was born with a right arm Brachial Plexus injury. She started Pt 2 weeks after she was born, and OT 3 weeks later to see if she would gain any movement or feeling in her arm...she didn't. At 8 months old Jaliyah had a very successful nerve graft that gave her feeling in her arm, and limited movement. Regardless of her injury she always pushed forwards, and conquered any obstacle that was put before her with her Beautiful smile.. At 8 years old, and again in January she had Botox to relax the muscles to give her weaker muscles a chance to get stronger with intense PT/OT. At 11 years of age Jaliyah did everything the doctors said she wouldn't do. She loves dancing, Jump roping, flipping , swimming, and cooking. Her dream is to own her own Restaurant so she could provide food to homeless children. Because of this injury Jaliyah was blessed to meet others with Erb’s Palsy from all over the world. Everyday is another chance to be GREAT!!! Always push forwards! #yoocandoanything#erbspalsyawareness#cantstopwontstop#protectourbabies#erbswarrior#jaliyahstrong #Actionstartsnow: Raising Hope for Erb's Palsy Raising Hope, Inc was started to provide supportive services and programs to children/ Adults with the same injury as Jaliyah. Since Erb's Palsy isn't a well known injury we want to raise awareness , and put a spot light on a injury that affects our children tremendously . If you are a parent with a child with Erb's Palsy please request us on Facebook at Erb's Palsy Support Group for Parents( Arm's In Motion), like Our business on fb at Raising Hope, Inc, and follow Jaliyah's on IG @Jaliyah1024
- Never ending trouble with Spinal Cord Injury
Introduction to my spinal cord injury Hello to everyone who’s reading my story. As you can see on most of the pictures I’m in a wheelchair. I am 26 years old and I suffered a spinal cord injury at D8-D9. Things aren’t always like they look like now and all you can see isn’t always as you can imagine. I had a traffic accident at the age of 21 and it’s still today anguish because five years later, nothing is solved and I’m the one who’s disadvantaged. I’d like to explain and tell you my story, what happened that night and I hope it won't bore you or be too heavy to read. I want you to understand that I need to tell the truth about it and maybe it could have the repercussion to make people aware about what it looks like to live in a wheelchair. I’m writing this with the hope that you can put yourself in my place in order to understand me. The Day that changed my life I was working in the hostelry that was my main occupation since I started to work, as a kid. That is the trade I always worked in and I know it’s impossible to go back to today. About 8 PM my little brother came to my work place with his heart shrunk in anguish and pain. He told me that our mother was very sick after drug ingestion. At that point, at only 21 years old, I knew something was wrong because I had never seen my brother in a such heavy mood before. That serious concern and my mother's state of health made me talk to my boss. Obviously, the problem was that I couldn’t leave before my work shift ended. All of my co-workers understood me and each of them said that they would clear tables and clean for me. My father was not that far from my work place, waiting to drive me to the hospital to see my mother. My parents were separated, however he would drive me there. How I sustained a spinal cord injury Sometimes I ask myself: “Why me? Why did that happen to me? It’s not fair, I just was worried and trying to help.” So my work shift ended, my father was there, waiting for me. He drove the scooter. That night was a fair in Málaga and because of the distance to the fair attractions, there was not that many cars and the traffic was almost quiet. That wasn’t unusual because people used to party, dance or just enjoy the fait with their family. My father and I were on the road to the hospital. I remember it as if it was only yesterday. It was the early hours of the D-day: 21 August 2013 and we were on the road to our own destiny. My father was driving very fast, in a kind of uncontrolled way. I learned from the blood analysis they made us later that day that he apparently had been drinking alcohol that night. How could he accept to drive his son in those conditions? The fact is that, we saw traffic lights turning red at a distance of 50 meters. He decided to go on and didn’t slow down but sped up. From our left came a big car with traffic lights on green for him. No way back. None of the two brakes. My father tried to avoid the car doing a sudden manoeuvre to the right. It did not help. We crashed fronto-laterally with the car. The scooter was damaged and carried away by the car. My father broke his hip and arm, but I was injured the most, the one who didn’t drive, the one who just wanted to know about his mother's state of health suffered a complete spinal cord injury at D8-D9. There were a series of chaotic events which left me as a paraplegic for the rest of my life. 5th anniversary of my spinal cord injury At this point, 5 years later, I’m still waiting for things to be solved. I’m waiting for the trial, no compensation yet. I have to settle for a shitty pension, all the medical problems related to the spinal cord injury and the expensive costs of all things we need, like medicine, wheelchair, specially adapted car, bathroom, etc. I can’t break free from all of this until the judge don’t consider it. I can’t live my dreams too. Life goes on One year ago, I tried skydiving and loved it. I want to be the first Spanish guy in a wheelchair to become a professional parachutist. I want to be able to jump out of the airplane and land alone with my wheelchair. This could be the perfect sport to practice for me because of the adrenaline that you release in each jump. That’s an expensive dream and I don’t have the money to do it yet. I can’t wait for the day that this dream can come true! Finally, THANK YOU ! I hope you did not get bored reading my story. I use to write a lot (in Spanish, sorry!) on my Instagram account: @ismaeelcapa_mlg . It’s my own method to express, release emotions and all that feelings of powerless faced after the accident. I’ll end by saying that I’m very impatient to see how will end of all the justice part of my story. I’ll hope to have enough money to have a comfortable situation and to finally realize my dreams. Even if I am in a wheelchair for the rest of my life. All of us needs to find something that can be released from the inconvenience of being in that situation and always think about what's happening. Our life changes, but we're still alive and have to enjoy it even if it’s in a different way than before. Thank you very much for taking some precious time to read this, my story. Thanks to all of you that understand, share and comment. This is my story, the real one. I live with severe depression but try to go on and help people continue fighting.
- There's Always A Way with Cerebral Palsy
חשוב תמיד לוודא שגם הקולות שלנו נשמעים פנו אלי האנשים הנחמדים מ"יוקאן". הם שאלו אותי אם יהיה לי נוח לדבר על איך המוגבלות שלי משפיעה עליי! כמובן, אמרתי כן! אז צילמתי וידאו שלי מדברת על החשיבות של להישאר עצמאית וגלויה בעולם שבנוי עבור אנשים בעלי יכולת ללא כל סוג של "חיסרון". It's important to always make sure that our voices are heard too I was contacted by the lovely people of YOOCAN. They asked me if I would be comfortable talking about how my disability affects me! Of course, I said yes! So, I have filmed a video of me talking of the importance of remaining independent and visible in the world built for able-bodied people and people without any kind of "disadvantage".
- Finally Diagnosed With Asperger's Syndrome at age 34
לשרוד עם תסמונת אספרגר שלום, שמי ג'יימי ואובחנתי עם תסמונת אספרגר (תסמונת מהקשת האוטיסטית) בגיל 34, לפני פחות משנתיים. אובחנתי גם עם הפרעות חרדה מוכללת, קשב והיפראקטיביות בעת ובעונה אחת. קבלת האבחנה הנכונה שינתה את חיי. כל החיים שלי ידעתי שאני שונה, אבל לא הצלחתי להצביע על מה מדובר. הצלחתי ללמוד בבית הספר ולפתח חברויות לאורך הדרך. עם זאת, אובחנתי עם אבחנות לא נכונות וקיבלתי תרופות שהביאו אותי לאשפוז. זו הייתה דרך קשה מאד. לא ידעתי מה יש לי אבל קיוויתי שהתשובה תבוא יום אחד. Surviving Life With Asperger's Syndrome Hello, my name is Jamie, and I was diagnosed with Asperger's Syndrome (Autism Spectrum Disorder) at age 34, less than 2 years ago. I was also diagnosed with generalized anxiety disorder, and ADHD at the same time. Finally getting the right diagnosis changed my life. My entire life, I knew I was different, but could not pin point what it was. I managed to attend school and develop friendships along the way. However, I was misdiagnosed with other conditions, and put on meds that led me to be hospitalized. It was a rough road. Not knowing what I was, was very hard, but I hoped an answer would someday come. ואז החלו ההתקפים בגיל 34 התחלתי לקבל התקפים והלכתי להיבדק אצל נוירולוג. בתוך שעה הכל נעשה הגיוני.ל כל הסוגיות שלי עם אור וצליל, משיכה למוזיקה והתנהגויות חוזרות ונשנות היה שם. נאמר לי כי יש לי תסמונת אספרגר הנדירה בקרב נשים. נכון להיום, ישנם יותר גברים מאשר נשים עם אבחנה פורמלית. זה הופך להיות נפוץ יותר עבור נשים להיות מאובחנות כראוי בשלב מאוחר יותר בחיים. מאז האבחנה, הייתי צריכה לשנות הכל בחיים כדי להסתגל למצב שלי. אפילו נאלצתי לשנות קריירה. עברתי פיזיותרפיה עבור העקמת בגבי ועמוד השדרה המעוקל. אני עדיין מחכה לקבל ריפוי בעיסוק פורמלי ומקצועי וטיפול בדיבור. בזמן שאני מחכה אני מלמדת את עצמי. אני מתחזקת בכל יום וכל הזמן מוצאת דרכים לעקוף את המוגבלות שלי. היא לא האטה אותי. יש לי עסק משלי ואני חיה באופן עצמאי לחלוטין. אני מקווה לעורר השראה באחרים עם הסיפור שלי. And then the Seizures Began At 34, I began to have seizures; which prompted me to see a neurologist. Within 1 hour, it all made sense. All of my issues with light and sound, fascination with music, and repetitive behaviors had a name. I was told that it was rare for a diagnosis of Aspergers for females. Currently, there are more males than females that have a formal diagnosis. It is becoming more common for women to be diagnosed correctly later in life. Since my diagnosis, I have had to change everything in my life to accommodate my condition. I even had to change careers. I was able to get physical therapy for the scoliosis in my back and curved spine. I am still waiting to receive formal and professional occupational therapy and speech therapy. While I wait, I teach myself. I am becoming stronger everyday and am continually finding ways to work around my disability. It hasn't slowed me down one bit. I have my own business and live completely independently. I hope to inspire others with my story.
- When Inspiration Porn is Simply Inspiration
מהו פורנו השראתי? לפי האפינגטון פוסט, פורנו השראתי מתרחש כשההישגים של אנשים הם מעוררי השראה בשל העובדה שיש להם מוגבלות. הרבה אנשים עם מוגבלות תופסים את המונח פורנו השראתי כשלילי. האפינגטון פוסט: "זוהי בעיה משום שאנשים עם מוגבלות אינם קיימים כדי לעורר השראה באחרים, ופשוט לחיות עם מוגבלות זה לא משהו שצריך לעורר אנשים אחרים". רוב האנשים עם מוגבלויות אינם רואים את הערך בשיתוף ההישגים שלהם עם העולם או כשמדברים על ההישגים שלהם בתקשורת כי הם יכולים לסיים את בית הספר התיכון או להשיג מקומות עבודה בדיוק כמו עמיתיהם הבריאים. What is inspiration porn? According to the Huffington Post, inspiration porn occurs when someone’s accomplishments are inspirational due to the fact that they have a disability. A lot of people with disabilities view the term inspiration porn negatively. The Huffington post also states, “It’s a problem because disabled people don’t exist to inspire others, and simply living with a disability isn’t something that should inspire other people.” Most people with disabilities don’t see the value in sharing their accomplishments with the world or having their accomplishments talked about all over the media because they are able to graduate high school or obtain jobs just as their able-bodied peers do. לחיות כדי לעורר השראה עם שיתוק מוחין אני, כאישה עם מוגבלות בתנועה ובשרירים הידועה בשם שיתוק מוחין, חולקת על התפיסה הרווחת של פורנו השראתי. פעם הייתי מסתירה את המוגבלות שלי כי לא רציתי להיראות כבלתי מסוגלת או שונה, אבל כשעברתי שלושה ניתוחים ששינו את חיי בצורה דרמטית ואיבדתי בני משפחה וחברים באירועים טראומטיים שונים בשלושת השנים האחרונות, הבנתי שהחיים שלי נועדו להיות שונים ולעורר השראה. Live to Inspire with Cerebral Palsy I, a woman with a movement and muscle disability known as Cerebral Palsy, have to disagree with the views behind inspiration porn. I used to be one who hid my disability because I didn’t want to be viewed as incapable or different, but as I have gone through three surgeries that have changed my life dramatically and lost family and friends through different traumatic events in the last three years, I have realized that my life has always been one that is different and meant to inspire others. הגדרה מחדש לפורנו השראתי אני לא צריך להחליף את החלום של הליכה על הבמה ב הסיום במכללה באמצעות הכיסא שלי רק בגלל שאני מפחד להיראות שונה כשאני משתמש ההליכון שלי. כמו כן, אם התקשורת רוצה לחלוק את הסיפור שלי שונה כדי לוודא כמו אנשים רבים ככל האפשר להיות מודעים לכך שלא משנה את ההבדל, החלומות של אנשים יש ערך, אני מברך על הרעיון ואתה צריך גם. לא עברתי שלוש ניתוחים בתוך שלוש שנים כדי לשפר את חיי רק כדי להסתיר את מה שעבדתי קשה כדי להתגבר עליו. אני מאמין שכולנו שונים בדרך כלשהי כדי לשמור על העולם הזה מעניין ואנחנו לא צריכים להתבייש בדרכים אנשים לבצע משימה או לחלוק את ההישג הזה. אני חושבת שאנחנו צריכים להיפטר מהמונח "פורנו של השראה", אבל לא באופן שבו אתה חושב. אני חושב הרעיון של פורנו השראה עדיין צריך להתקיים; אנחנו צריכים להשתמש ההבדלים שלנו כדי לעורר את עצמנו ואחרים כדי להשיג את מה שחשבנו לא היה אפשרי, אבל פשוט פשוט לקרוא לזה השראה. לחבק את ההבדל שלך להיות ההבדל כי זה מבחינה טכנית מה ההשראה מייצג. Redefining inspiration porn I shouldn’t replace the dream of walking across the stage at college graduation by using my wheelchair just because I’m afraid of looking different when I use my walker. Also, if the media wants to share my different story to make sure as many people as possible become aware that no matter their difference, people’s dreams have value, I welcome the idea and you should too. I didn’t go through three surgeries in three years to improve my life just to hide what I worked hard to overcome. I believe we are all different in some way to keep this world interesting and we should not be ashamed of the ways people accomplish a task or share that accomplishment. I think we should get rid of the term "inspiration porn," but not in the way you think. I think the idea of inspiration porn should still exist; we should use our differences to inspire ourselves and others to accomplish what we thought wasn’t possible, but just simply call it inspiration. Embrace your difference to be the difference because that is technically what inspiration stands for.
- How I beat all the odds with a Spinal Cord Injury
How I Sustained a Spinal Cord Injury The list of injuries I suffered is long, I broke my leg & a couple of ribs with cuts and lacerations all over my body but the spinal cord injury made everything seem insignificant! For the next couple of months my life was all about hospitals, feeding tubes, emergency suctions, ventilators. Life was a struggle. I was fighting for it every second that I didn’t think beyond that moment. I didn’t know if I would make it out alive. The constant beeps of the machines…the constant fear of not knowing if I’ll survive the next attack. During one of the many procedures that I went through my vocal cord got cut. The only means of communication that I had was also gone. It took time to come to terms with the situation not likely to change. I spent 3 years, completely bedridden, rarely went out…that too only amongst family. I was so weak, anemic, I had developed pressure ulcers. I hated any help that my parents hired. I used to feel embarrassed of being fed like a baby. I felt so self-conscious when I sat in my chair because they had to tie me to it with a belt because I couldn’t hold my body. Finding the light after spinal cord injury My hands used to be in splints. My friends came to see me but it was not the same. Life was passing me by and nothing in this situation was my fault! That was the darkest period of my life. It is said that when you hit rock bottom the only way is to go up. Even though my body was broken and felt alien to me, my mind was mine to command. I started physiotherapy. I started my studies again, enrolling myself in LLB. I’ve done a post graduate diploma in Human Rights. Recently I did my LLM in Dispute Resolution. A wheelchair was not something to despise, it was a means to my independence...it was a part of me now and I was grateful to it. Being in a wheelchair is not an excuse for not doing anything. I may not be in control of a lot of things in my body, just like in my life, but I do have a choice in how I deal with it! For me the real challenge was overcoming my own inhibitions, the self-doubt. We tend to be our own worst enemy. We have pre-conceived notions of what our life should be. As cliché’s as it may sound but life is what you make of it. What i have learned from my spinal cord injury The point is changing plans takes time and efforts but it should not stop you from setting and achieving new goals. The word achievement has a different meaning for everybody. Your goals can range from climbing the Everest to just sitting in a wheelchair for 1 hour without fainting! You can either run, walk or crawl, it doesn’t matter how…what matters is you move…you keep on moving forward. What matters is that you don’t let any self-doubt, any negativity, any depressing thought hold you captive. Giving up was never an option for me and I have my family to thank for that. They are like a wall of support…they don’t let me doubt my abilities for a second! I don’t feel like I am defined by my disability, but it has made me into the person that I am….and I am proud of it. My injury has taught me a lot. I think it has made me a better person or at least made me realize that I need to become one! It has taught me humility, sensitivity, it has made me more understanding, & taught me to be nonjudgemental! It has made me realize what matters in life. What to let go of and what things to hold on too. As Nelson Mandela said “Don’t judge me by my successes, judge me by how many times I fell down and got back up again!”
- Leap of Faith: My Limb Loss Story
החיים לאחר אובדן רגל לפני כמעט שנה עברתי תאונה שלקחה חלק מרגלי השמאלית. הייתי ברת מזל לקבל רגל תותבת יחסית זמן קצר לאחר מכן שהחזירה אותי למסלול להיות פעילה שוב מבלי להרגיש שהחסרתי פעימה. אני כל כך אסירת תודה בכל יום שאני יכולה ללכת ולעשות את הדברים שאני אוהבת. כל יום הוא מרהיב כל כך. החיים יכולים להשתנות ביום, כמו שלי, לטוב ולרע. אני אף פעם לא לוקחת את הזמן שלי כמובן מאליו. הזמן ניתן רק לנו. אתן יכולות לגדול כל כך הרבה ביום. אני מרגישה שאין לי זמן להיות אומללה. אני אוהבת את החיים שלי ומאמינה שצריך לחיות אותם בגדול. התרגלתי לאתגרים. בעיה יכולה להוות רק ניסיון חדש ומרתק בחיים. למדתי דברים שלעולם לא הייתי מכירה. למדתי להכיר את עצמי בדרכים שלא הייתי חולמת לפני התאונה שלי. אני עדיין אני ושום דבר לא יכול להפריע לזה, רק להאיר את זה. איבוד הרגל שלי לא שינה את רוחי, הוא העמיק אותה. יש כל כך הרבה יותר בקנה עוד בשבילי; אני יודעת שאני רק מתחילה. life After Limb Loss Almost a year ago I was in an accident that took part of my left leg. I was fortunate to get a prosthetic leg relatively soon after which put me on track to being active again without feeling like I missed a beat. I am so thankful every day that I get to walk and do the things I love. Each day is so spectacular. Life can change in a day, like mine did, for better or worse. I never take my time for granted anymore. Time is only lent to us. You can grow so much in a day. I feel like I don't have time to be unhappy. I love my life and I believe it is supposed to stand for something great. I've gotten used to the challenges. A problem might just be a new and exciting take on life. I've gotten to learn things I never would have known before. I have come to know myself in ways I wouldn't have dreamed possible prior to my accident. I still get to be me and nothing can ever get in the way of that, it can only illuminate it. My limb loss did not change my spirit, it deepened it. There is so much more in store for me; I know I'm just getting started.
- More than a body
Soul Power! From ever since I was a little girl, I innately knew my soul holds all the power, wisdom, beauty, magic and truth. This is why I never "felt" disabled. I always knew I was "more than a body". My body could not define me. My beauty is not bound to flesh and bones. Of course I experienced moments in my life where I felt completely disempowered, detached, unconfident and not at one in mind, body and soul... I now realize the issue was never about me and how I truly felt about my body, but how society made me feel about my body. When you are visibly disabled, you are often made to feel guilty, ashamed or embarrassed about your body. YOUR BODY IS NOT AN APOLOGY. Step in your power and say "THIS IS WHO I AM". Let nothing or no-one tell you otherwise. Be so at peace with your body, that no bad words, negative comments or fearful stares can stop you from feeling beautiful, confident and fabulous!! Perfection has had it's day In this media driven society, we are all under so much pressure to look a certain way, be a certain way and have this incredible, wealthy, healthy, successful life. None of this equals happiness. The pursuit of perfection will never equal happiness. Why? Because perfection does not exist. As disabled people, we can never be "perfect" in the eyes of society. Since the beginning of time we have been seen as less than, unequal and unable - like outcasts rather than inmates of society. It's time to show the world what it means to be disabled in 2018! We are not done in, done for, wrecked, maimed, lamed, out of action, broken and powerless like the Thesaurus describes us. We are strong, resilient, courageous, worthy, beautiful, creative, powerful human beings who have gifts to share, who deserve to take up space in this world, who deserve representation across all types of media - in the fashion and beauty industries, who deserve full and equal access in the world! Do not like society strip you of your beauty and power. Reaching for the stars Earlier this month, I became the first disabled model to be featured in a Primark Campaign. The image received over 114k likes on their Instagram page - the highest liked post ever! I feel so proud and excited to be part this much needed change in society. We have made some slow progress, but there is still a long way to go. Ten years ago when I first started modeling, there were no models out there like me, definitely not in the mainstream! I remember seeing a video of a model - she said "New York Fashion Week would rather burn down than see a disabled model on their runway". This comment only made me more determined. I knew this wasn't about me, but for every single disabled person out their in the world longing "to be seen", like REALLY SEEN. When it comes to diversity in fashion, disability is the last barrier to break. Diversity is the new beauty ideal. More than anything, I seek to be a role model to disabled people seeking confidence, empowerment, self belief and self love. I want to prove that everything and anything is possible, as long as you believe in yourself, work hard, stay true to yourself and NEVER EVER GIVE UP. Dreams do come true. Your dreams are valid. One of my goals is to be made the face of a huge fashion or beauty brand (or both!!) I want my soul to be seen and my body to be embraced and celebrated. To shine my light so brightly, others can help but to ignite their own. Spread the love and light on a global scale. The sky is not the limit when there is a whole universe beyond. This is only the beginning.
- The Good Wolf: 1/2 a Second Will Not Define Him
A short documentary of raw power, hope, Collegiate football player and competitive @Crossfit athlete @Minosolomon was paralyzed from the waist down in 2015 - yet in just two years he'd somehow found the strength to return to the gym. Go skydiving. Canoeing. Get his MBA. Pretty much do allllll the things. And for the first time, Mino’s sharing exactly how he fought to not let that half-a-second accident define his life. In this raw but powerful 18min documentary film, Mino holds nothing back in how he overcame the darkest moments of his life - in the hope that it can help you overcome your own challenges in some small way. We are SO excited to help champion this story, and we hope you find the same strength we did from it! Take a moment to watch “The Good Wolf” - worth every second of your time. https://youtu.be/NbC2v5kpqmg סרט דוקומנטרי קצר על כוח ותקווה שחקן הפוטבול מכללות ואתלט הקרוספיט התחרותי מינו סולומון נעשה משותק מהמותניים ומטה ב-2015 - אך בתוך שנתיים בלבד מצא איכשהו את הכוח לחזור למכון הכושר, לצניחה חופשי ולקיאקים, לסיים את התואר השני שלו. פחות או יותר לעשות הכללללל. ובפעם הראשונה, מינו משתף בדיוק איך הוא נלחם כדי לא לתת לתאונה הזאת של חצי שנייה להגדיר את חייו. בסרט תיעודי חזק זה של 18 דקות, מינו מתאר כיצד התגבר על הרגעים האפלים ביותר בחייו - בתקווה שיוכל לעזור לכם להתגבר על האתגרים שלכם בדרך כלשהי. אנחנו כל כך מתרגשים לעזור בשיתוף הסיפור הזה ומקווים שתמצאו את אותו הכוח שאנו מצאנו בו! קחו רגע כדי לצפות ב"הזאב הטוב" - שווה כל שנייה מזמנכם. https://youtu.be/NbC2v5kpqmg
- Alice the Ace Disabled Superhero
Become a Superhero! If you or anyone you know, that would love to be featured in our superhero series, direct them to our website at wecant2wecan.org to fill out our simple forms, and if you are selected you could have the chance to be apart of our extraordinary superheroes! Awareness is so important! :) Alice the Ace is our first extraordinary superhero that utilizes her Down syndrome to help her save the day!
- The Miracle Diva
הדיווה המופלאה שתגשים את ייעודה הצפייה בסרט תיעודי קצר זה תשפיע עליכן רגשית. תהיו מבולבלות, נדהמות, מרוגשות, מונעות ומעודדות. אני תמיד נוהגת לצטט את אלינור רוזוולט - "אנחנו צריכים חולמים, אבל חולמים שהם אנשי מעשה". אימצתי את הסיסמה העמוקה הזאת כדי להמשיך לעורר תקוות, חלומות ושאיפות. ברוכות הבאות לחייה של "הדיווה המופלאה"! The Miracle Diva That Will Fulfill Her Purpose When watching this short documentary, you will endure some emotional affects. You will be baffled, amazed, touched, motivated, inspired, and encouraged. I've always applied the infamous quote by Eleanor Roosevelt, "We Need Dreamers, But We Need Dreamers Who Are Doers". I've adopted this profound slogan to continue to inspire my hopes, dreams and aspirations. I welcome you into the life "The Miraculous Diva!"
- Osteogenesis Imperfecta doesn't stop Hadley from Surfing
Fracture #88 won't stop me Hadley’s newest fracture #88 happened only a few weeks ago, but that wasn’t going to stop her from trying to surf with her dad. As her mom I can honestly say I was scared and so worried for Hadley. I just kept thinking, all it will take is a single crash and she’s going to have multiple broken bones. I kept questioning why Eric and I are letting Hadley try this.... On the other hand we both really try not to place any kind of limits on her and what she can do and try. I was just hoping and praying she would decide not to try to surf with her dad. I felt a sigh of relief when she came over to me and told me she was nervous right before she entered the water. I thought for sure this meant she wasn’t going to do it, I even tried to talk her out of it... However Hadley assured me that she really WANTED to surf, and that she was just a little nervous.. So Hadley did Surf broken foot and all!!! Hadley loved it and even did it twice. A little about Hadley Hadley Larsen was born in November 2012. She was diagnosed with a rare genetic disorder called Osteogenesis Imperfecta, or brittle bone disease. Osteogenesis Imperfect or OI is caused by a lack of collagen produced by the bone which in turn causes the bones to be extremely brittle and fragile. This can produce many problems for the individual, and not only in the bones, but in any area of the body that requires collagen. Fracturing is very common. In many cases without treatment and surgery the individual will never be able to walk. Depending on the severity of the form it can even cause death. Hadley has had 88 fractures that we know of and it is certain that she will have more in the future. She has had 15 surgeries with more to come. Hadley never lets her disease stop her from living life to the fullest.












