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חיים עם פגיעה בחוט השדרה שמי הוא האקי דוקו, נולדתי ב-18 ביוני 1969 בקרוג'ה, אלבניה. אני גר במילאנו, איטליה עם אזרחות כפולה. הקמתי משפחה עם אשתי, אנורה, ויש לי שני ילדים. מריו בן 11 ואליסה בת 7. סבלתי מפגיעה בעמוד השדרה בגלל תאונה ב-1997. מיד לאחר התאונה התחלתי לעשות ספורט שמעולם לא עשיתי לפני התאונה. זה היה תלוי בנחישות ובמוטיבציה שלי להבשגיע לרמה הגבוהה ביותר של ספורט וביצועים כמו שכל ספורטאי חולם. life with a spinal cord injury My name is Haki Doku, I was born June 18,1969 in Krujë, Albania. I live in Milan, Italy with a dual citizenship. I have built a family with my wife, Enora, and I have two children. Mario is 11 years old and Alissa is 7 years old. I suffered a spinal cord injuriy because of an accident in 1997. Immediately, after the accident I started to play sports, but I have never been included in sports before the accident. It was up to my determination and motivation to go to the highest level of sports and performance that every athletes dream of. המשחקים הפראלימפיים לונדון 2012 ב-2012 השתתפתי במשחקים הפראלימפיים בלונדון. ייצגתי את אלבניה ברכיבה והייתי לספורטאי היחיד שייצג אותה בהיסטוריית המשחקים הפראלימפיים. https://youtu.be/XWy9ijpJHUs Paralympic Games London 2012 In 2012 I participated in the London Paralympic Games. I competed in the paracycling discipline representing Albania and I was the only athlete representing it in paralympic history. https://youtu.be/XWy9ijpJHUs שיאי גינס עולמיים שברתי מספר שיאי גינס עולמיים: - שיא גינס במרחק הגדול ביותר שנעשה עם כסא גלגלים - 121 ק"מ ב-12 שעות. אצטדיון סיוויקה, מילאנו, איטליה, 16 במאי 2015. - שיא גינס בירידה במדרגות עם כיסא גלגלים - 2,176 מדרגות בשעה אחת. וולפסבורג, גרמניה, 24 בספטמבר 2016. - ירידה במספר המדרגות הרב ביותר בכיסא גלגלים - 2,404 מדרגות בשעה אחת. פרנקפורט, גרמניה, 11 ביוני 2017. עם שיא זה שברתי את הקודם שלי של 2,176 מדרגות. https://www.hakidoku.com/goal Guinness World Record I made the Guinness World Record for the following:- The Guinness World Record for the greatest distance made with a manual wheelchair in 12 hours is 121 km (75.19 miles) and was achieved by me at the Arena Civica, Milan, Italy, on May 16 2015. - Guinness World Record for stairs descendences with a wheelchair in one hour 2,176 stairs, achieved by me in Wolfsburg, Germany, on September 24,2016. - The most stairs descendences with a wheelchair in one hour is 2,404 stairs and was achieved by me in Frankfurt, Germany, on June 11, 2017. I have attempted this record in order to beat my previous one of 2,176 stairs. https://www.hakidoku.com/goal

Wheelchair under seat safe bag I design and make special bags that sit perfectly under the seat of your wheelchair and can be connected to many different models of non-folding wheelchairs. I’m still in the process of development and I would appreciate any valuable comments, especially from those who feel it does not fit their chair structure. The bag is very comfortable and safe, it’s not possible to steal anything from it because it sits securely in a place that is accessible only to the person sitting in the chair. I have already made many similar bags for myself ( i am a wheelchair user) and friends, and have received thanks and very positive comments. The bags are made from black or grey denim, or matte Vinyl. It has two pockets with two-ways zipper runners. Measurements: 20: 21:7 cm, adjustable long straps, fit for big size chairs as well.

הפציעה ששינתה את חיי בשנת 2013 נפלתי מהסוס שלי. מאז החיים שלי השתנו והתחלתי להשתמש בכיסא גלגלים, הליכון וקביים. עדיין יש ימים שבהם אני לא יכולה לקום מהמיטה בגלל הכאב. יש לי גם בעיות שינה. היו לי כאבים ברגליים מאז ילדותי, אבל תאונת הרכיבה החמירה את המצב. כאב העצבים היה נורא, נטשתי את תשוקתי לרכיבה על סוסים ולא יכולתי ללכת בלי עזרה - אני עדיין לא מסוגלת. הייתי חייבת לעזוב את העבודה הישנה שלי ולא ידעתי מה לעשות. הרגשתי אבודה כי הייתי רגילה ללכת לאורוות, לאיגרוף ולסוגי ספורט נוספים לפני התאונה. the injury that changed my life In 2013 I fell off of my horse. After that my life changed and I starting using a wheelchair, walker & crutches. There are still days when I can't get out of bed because of the pain. I also have trouble sleeping. I have had pain in my legs since childhood, but the riding accident made everything worse. The nerve-pain was terrible, I deserted my passion for horseback riding, and couldn't walk without help- I still can't. I had to leave my old job and didn't know what to do. I felt lost because I was used to going to the stables, boxing and doing other sports before the accident. איך המוסיקה עזרה לי להתרפא היה לי המון זמן שלא ידעתי מה לעשות איתו, עד שהתבקשתי להיות חלק מלהקה. המוסיקה עזרה לי לחיות עם הכאב. אני כותבת שירים משלי ועכשיו יש הרכבים שונים שבהה אני שרה רוק, ג'אז, קאנטרי, בלוז ואפילו מוסיקה קלאסית. אני מופיעה ואפילו השתתפתי בתכנית הטלוויזיה "אקס פקטור" בפינלנד עם ההרכב ההרמוני שלי. היינו אחת מארבע הלהקות הטובות ביותר בתחרות! how music has helped me heal Now I have plenty of time, and didn't know what to do with it until I was asked to be part of a band. Music has helped me live with the pain. I write my own songs and now have different groups where I sing rock, jazz, country, blues, and even classical. I do gigs and was even featured on the X-FACTOR Finland with my harmonizing group. We were one of the four best BANDS in competition!!! דוגמנות של אדם עם מוגבלות אני גם מדגמנת עכשיו. אני חושבת כי מוגבלות לא צריכה למנוע מכן לעקוב אחר החלומות שלכן! אני כבר מדגמנת עבור מגזינים, פרסומות וכו'. הסגנון שלי הוא פינ-אפ ואני אוהבת וינטג'. אני שמחה לרכוב על סוסים בימים הטובים שלי. Modeling as a person with a disability I also model now. I think that disabilities should not stop you from follow your dreams!!! I have been modeling for magazines, advertisements, etc. Pin up style is my thing and I love vintage, especially glamour and old western! Now I'm happy to ride horses on my good days. Check out my facebook and instagram for more info about me and my music :) Facbook: @cherryleebyrd Instagram: @cherrynancytinkerbella

Briefly About Me I've had a visible disability my whole life because I was born with fibular hemimelia and my left leg was amputated below the knee when I was two. My disability has lead me to my career as a disability rights attorney, it's the reason I met my husband (who makes legs), and has provided me with a platform to share a message of positivity and strength through competing in triathlons. My Most Ambitious Challenge As An Amputee This past June, I embarked on my most ambitious journey yet in tackling the Boulder Ironman, which is a 2.4 mile swim, 112 mile bike, and 26.2 mile run - all of which must be done in 17 hours. I had issues with my bike and the temps rose to the upper 90's, but I still managed to finish with just 48 seconds to spare in 16 hours, 59 minutes, and 12 seconds. It was one of the most challenging and rewarding things I've ever done, and it still doesn't feel like it really happened even though I was there the whole time. Even though there are times when being an amputee can be a challenge, I wouldn't trade it for the world because I love my life just as it is with the hand of cards I was dealt.

Knott's berry farm We celebrated my 3rd birthday at Knott's berry farm it was so fun. I had an amazing time. I got to get on some rides and eat lots of treats and get some souvenirs.

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תאונת הצניחה החופשית ותוצאתה היי, שמי קטיה. בגיל 24 המצנח שלי לא נפתח במהלך צניחה חופשית לילית ונחתתי ב-113 קמ"ש על העצה שלי (עצם הזנב). הקריירה שלי כפעלולנית הסתיימה. הוטסתי במסוק פינוי רפואי לבית החולים ואובחנתי עם תסמונת זנב הסוס (מצב נוירולוגי חריף המאופיין באובדן הפעילות של שורשי עצבים בתעלה השדרתית, באזור הממוקם מתחת לסיום חוט השדרה עצמו). איבדתי 2 ס"מ מעמוד השדרה, שרירי הרגליים התחתונים שלי התנוונו, שלפוחית ​​השתן, המעיים והמיניות השתנו לעד. אושפזתי לכמעט שנה. לאחר השחרור התחלתי ללמוד במכללה קהילתית ליד דטרויט לימודי תעודה שנמשכו שנתיים, ולאחר מכן הועברתי לניו מקסיקו טק וסיימתי בהצטיינות. אני מוסמכת כאחות. למרבה הצער במהלך הלימודים שלי, הכאבים ברגל ובגב החמירו כל כך שהומלץ לי להתחיל לקבל זריקות אפידורל. כמו כן, כמה שנים לפני כן הייתי צריכה לעבור ניקור מותני שכאב כמו התאונה שלי, למרות שביקשתי מהרופא להיות זהיר. The Skydiving Accident and the Aftermath Hi, my name is Kaatje. At age 24, my parachute didn’t open during a night time skydive, and I landed at 70 mph on my sacrum (tailbone). My career as a stunt woman was over, I was flown by trauma chopper to Riverside General and was diagnosed with Cauda Equina syndrome. I lost 2 inches of my spine. My lower leg and foot muscles are atrophied; bladder, bowel and sexuality are forever altered. I was hospitalized for almost a year. After discharge I went to a community college near Detroit, then transferred to New Mexico Tech and graduated with high honors. I earned a Master as a Physician Assistant (PA-C). Unfortunately during my studies, my trunk, leg and back pain intensified so much that I was recommended epidural steroidal injections. Also, a few years prior I had an unexplained 105 fever and muscle spams and needed a lumbar puncture. This hurt as much as my skydiving accident, despite asking the doctor to be careful. איך הארכנואידיטיס משפיעה עליי לעולם לא אהיה בטוחה מה גרם למוגבלותי להחמיר, אבל כל יום אני מרגישה כאילו אני טבולה בקרח, ואילו עמוק בפנים זה כאילו מישהו שופך נוזל עופרת מותכת מחזי אל בהונותי. בשנת 2015 אובחנתי עם ארכנואידיטיס דביקה - מחלה נוירופתית כרונית גורמת סבל וחשוכת מרפא, הנגרמת על ידי דלקת והצטלקויות של הקרום העכבישי של המוח. אובחנתי גם עם גידול שפיר בחוט השדרה, ככל הנראה כתוצאה מהתאונה. זה גרם לתסמונת כאב נוירופתית מרכזית (שכיחה גם לאחר שבץ). שני תסמיני הכאב החמורים והנדירים גרמו לי להפסיק לעבוד אחרי שמונה שנים בלבד כאחות ונשבר לי הלב. מאז אני מרותקת למיטה 22 שעות ביממה. How Arachnoiditis Affects Me I will never be sure what caused my disability to worsen, but everyday it feels like I’m dunked in ice, while deep inside it’s as if someone's pouring molten lead from my chest to my toes. In 2015 I was diagnosed with lumbosacral adhesive arachnoiditis, a progressive neuro-inflammatory disorder that is incurable and untreatable. I was also diagnosed with a benign spinal cord tumor, a hemangioma at T4, presumably from the skydiving accident. This causes central neuropathic pain syndrome (also fairly common after a subthalamic stroke). Having two severe, rare pain syndromes meant I had to stop working after only eight years as a PA-C, which broke my heart. I am now bed bound 22/24 hours. קומדיה וקטמין עירויי קטמין (סם הרדמה) עזרו להפחית את כאב העצבים החמור ואת הדלקת בחוט השדרה, אך הקומדיה היא זו שהצילה את חיי. שלושה שבועות לאחר אבחון הארכנואידיטיס הדביקה בשנת 2015, התחלתי לבלות קצת זמן מחוץ למיטה בבית החולים שלי ולעשות הופעות. אני שוחה שלוש פעמים בשבוע בבריכה מחוממת ועסוקה כסופרת. "מלכת הקטמין" בקרוב יהיה זמין באמזון. להיות מרותקת למיטה אלו חיים יוצאי דופן, ולעתים קרובות בודדים מאחר שהמשפחה שלי חיה בחו"ל ומעט מאוד חברים עדיין מגיעים לבקר. אבל חדשות טובות - אזכה לספר על קומדיה וקטמין בהרצאה ב-TED ב-29 בספטמבר. דרך קומדיה, כתיבה וסיפור אני סוף סוף מתחברת לקהילה - וזה שווה הכל עבורי. Comedy and Ketamine Ketamine infusions (first outpatient, now weeklong at an academic hospital) help decrease the severe nerve pain and spinal cord inflammation. Comedy however, saved my life. Three weeks after the adhesive arachnoiditis diagnosis in 2015, I did my first set. I use the little time I have outside my hospital bed to do an open mic, or a show. I swim three times a week in a heated pool and keep busy as a writer. My Kindle Single, a mini memoir called “The Queen of Ketamine” will soon be available at Amazon. Being bedbound is an unusual life, and often lonesome as my family lives abroad, and very few friends still visit. Good news too, my take on comedy and ketamine was chosen for TEDxABQ on September 29. Through comedy, writing and storytelling, I finally connect with community, and that means the world to me.

I am in a constant state of awe at the connections we make because of Down syndrome. Jacob & I were recently in Chicago for a baby moon before Little Sister gets here. On our last night, we decided to go to a nice dinner on the “Magnificent Mile.” Yet, on a whim, we opted for a different restaurant a little further down. The view was romantic. The service was spectacular. The food was amazing. Keshet: working for inclusion of people with disabilities The best part, however, were the people setting the room up for a local fundraiser. Alongside them, we noticed a man with special needs which prompted us to find out what the fundraiser was for. What we found was KESHET. Keshet is an organization in the Chicago area that provides any opportunity possible for someone with special needs to thrive. I’m talking birth through adulthood. Amazing people doing amazing stuff for more amazing people. After meeting one of the organizers, we were invited to join in the fun & we loved every minute that we got to brag about our sweet girl! What we had stumbled upon was a happy hour fundraiser hosted by their junior leader board, so most of the guests were in their 20’s & 30’s. It was so great to be surrounded by people our age that loved & understood someone with special needs as much as we do. Learning more about Keshet As we mingled, we got to meet the man that prompted us to introduce ourselves in the first place! Avi has Williams Syndrome & has been involved in the program since he was a kid. He now works hard for the organization running one of the housing units for adults. Avi was extremely busy during the event, he must have personally known every single guest- regardless, he greeted each one before being pulled away to give a short speech. We also bonded with the CEO and one of her daughters. The CEO had been with the organization for almost 30 years! The passion she had for helping people with special needs was almost palpable. Her daughter had the same qualities as her mom, showing much love and passion for those with special needs & we chatted for a long time. Kara’s story easily stole their hearts and they even got to fall a little bit more in love as we Facetimed during Kara’s bedtime. Friendships For Life As I continued chatting with the daughter she said something that really stuck with me. She had recently moved back to the Chicago area to take on a job within the organization. She had been surrounded by people with special needs, including Avi, all her life as her mom worked her way up the Keshet ladder. When she took on the job, she found herself working as Avi’s boss. She said that sometimes it can be really hard to work with him. Why? Because they are such good friends.I thought “What?! That’s it?” This is what the world needs to see. That’s the big challenge of working with someone who has a disability – laying down some boundaries regarding your friendship. Imagine that. Finding a new family As a special needs mom, it is very easy to feel lost and alone. It’s easy to slip into the mindset that what you’re doing isn’t working and what you’re trying to accomplish, big or small, just isn’t going to happen. Then something like this happens – you unexpectedly stumble across a group of amazing people. You’re states away from home and yet you’ve found family. What if we hadn’t taken our last minute getaway? What if we had kept our plans to eat at that first restaurant? There was a reason we came across this fundraiser. It was the perfect reminder that people are GOOD & that we are never alone. There are tons of others fighting just as hard as we are to give people like Kara & Avi a voice. ~You may say that I’m a dreamer, but I’m not the only one. I hope someday you’ll join us. And the world will live as one~John Lennon

I've only got one leg: what's your excuse? I was a shy, active, introverted teenager who was good at sports and loved to dance. I was never satisfied with how I looked and had zero body confidence, despite being fit and healthy. Sports embraced my competitiveness and allowed me to learn about cooperation, collaboration, rules and boundaries. I used it to release my anger and frustration and used dance to feel free. Being a people pleaser and helping others, a natural career choice for me was to be a PE teacher. I encouraged my students to use sport and dance to express themselves – feel the beat, enjoy the adrenalin rush and channel their emotions through physical activity. I was 30 when I had an accident and my leg was amputated above the knee. For a long time I lost these outlets. I felt stuck and empty. I threw myself into trying to be the best mother I could be and had my children, learning to walk and grow with them. There were no disabled role models for me to follow at the time and I felt lonely and lost. My body kept changing shape with two pregnancies and walking with a prosthetic leg was so frustrating and awkward. I would try to hide it at all costs, wearing long, baggy clothes and I loathed my body. Over the years I learned to parent myself and as I taught my children about self-awareness, empathy and being kind, I realised I needed to follow my own words. Losing my leg made me grieve for the active person I once was and start adapting to being the new person who just did things differently. Gradually I began to accept the new me and rediscovered my competitive spirit. I tired of dying my hair and decided that I no longer wanted to hide in the shadows. I grew my hair out and embraced the grey. I joined a gym and became fitter and stronger. I have achieved more things as an amputee than I ever did before and absolutely love pushing myself – there are no limits anymore. As my children are now living independent adult lives I can use my experiences to live the life I want to have, despite my amputation. I retrained to be a counsellor and help others find their paths. I no longer need other people’s approval and am happy to project myself into the public arena. I am represented by Zebedee Management (#zebedee_management), a specialist talent agency who promote models with physical disabilities and learning difficulties with the aim to increase representation in the media and fashion world. I spread the word that living with a disability can be difficult but life is not over. It begins when you take back control and tell yourself you are in charge now. I don’t wait for life to happen anymore, I make things happen and will try anything once. I want to be the role model to others that I wish I had twenty years ago. I talk, I listen, I share and I live. All of this is helped massively by my supportive family and friends, but above all by my children who love me for who I am and that’s what really matters. There is also a man behind this strong woman who is my everything. The one person who I can count on, no one will ever take his place, no one comes close. My Rules for Life - see below Tip #1: I am beautiful and love my body for everything it allows me to do Tip #2: I am not scared of being different Tip #3: I can do anything Tip #4: I am grateful every day Tip #5: I never save clothes for ‘best’. Every day is best and I wear what I like when I like. Tip #6: Take a chance, make a choice and create change Tip #7: Stand tall and proud Tip #8: Diversity is the norm Tip #9: Define your own expectations Tip #10: Be More Nancy

תמיכה בשיתוק מוחין שלום, שמי הוא מייקי, אני בן עשרים וחמש. בכיסא גלגלים מגיל שנתיים בגלל וירוס במוחי. הווירוס כמעט הרג אותי ולא הייתי אמור להישאר בחיים עד ליום הולדתי החמישי. כיום אני חי בעצמי בהצלחה. אני בהכשרה להיות יועץ התמכרויות, נואם מוטיבציוני, משחיז סכינים מקצועי ובעל צדקה משלי לילדים אליה הולכים הרווחים מהשחזת הסכינים. אני גם מעלה סרטונים ליוטיוב. השם שלנו ביוטיוב ובפייסבוק הוא "Cerebral Ballsy". אני משתמש בפלטפורמות אלה כדי לעורר השראה ולהניע. בשל ניסיון התאבדות לאחרונה והיותי בתקופה חשוכה, ידעתי שאני צריך לשנות את דרכי, אז התחלתי את "חיבוקים חינם" שבו אני נותן חיבוקים חינם לאנשים שמבטיחים לחייך. לאחר מכן התחלתי את הצדקה לילדים, שבה אני לוקח את הרווחים שאני מרוויח והולך לחנויות הילדים המקומיות לשלם עבור הצעצועים של הלקוחות. אני רוצה שאנשים יידעו לא לוותר ולא להיכנע לעולם, לא משנה מה. Advocating for Cerebral Palsy through "Cerebral Ballsy" Hello, my name is Mikey, I am twenty-five years old. I have been in a wheelchair since I was two due to a virus in my brain. The virus almost killed me and I wasn't supposed to live to see my fifth birthday. In the present day, I do well for myself. I am in school to become an addiction counselor, I am a motivational speaker, a professional knife sharpener and I have my own children's charity that I do from the profits of what I get from sharpening knives. I also do videos for YouTube. Our YouTube and Facebook name is "Cerebral Ballsy." I use these platforms to inspire and motivate. Due to a recent suicide attempt and a dark place in my mind, I knew I had to change my ways, so i started "free hugs" where I give out free hugs to people who promise to smile. After that I started my charity for children, where i take the profits that I earn and I go to local kids stores and pay for customer's toys. I want people to know to never give up and never surrender, no matter what.

Jared’s OBPI warrior journey Jared is a 3 year old toddler living with a right side birth Brachial Plexus Injury. Due to certain circumstances, I can’t talk too much about the birth. I will attach the news story/video of Part 1 of the story so everyone can see that part for themselves. Jared loves to push himself and do things that's difficult for him. Jared attends therapy 5 days a week for OT/PT and aquatics. He loves to swim, go to the park, play with car & trucks, sing and dance. Jared had surgery one year ago at Shriners hospital in Philly to help his range and motion. It’s not known if he’ll need more surgeries in the future. In Jared's early part of his life crawling/rolling when he was a baby was such a challenge and difficult for him. The normal tasks kids learn how to do such as feeding yourself, pulling up your pants, putting on pants, brushing your teeth, playing catch were difficult for Jared. He continues to fight and tries to adapt to every challenge/ obstacle that comes his way now and in the future living with OBPI. #JusticeforJared #erbspalsyawareness

B.B. Cream Foundation The first cosmetic line created and curated for the visually impaired community. Almost every product is designed to be applied with the fingertips. Brushes create a barrier between the products and the details of the face, so these products are absolutely incredible. The foundations are more than the usual product. They include a serum, a sheer foundation, a B.B. cream that adheres to your skin tone, a moisturizer, and a primer. Each shade is labeled with Braille. Eye-Conic Eyeshadow Palettes Each palette is color coordinated and labeled with Braille, to make shade selection much easier. The formula is easiy to apply with the fingertips. Each shade is described to paint a picture for the customer. All packaging and booklet included features Braille. Setting Powder and Spray. Easy to use and apply, the silky like texture of the powder can be applied with the fingertips or a brush to lock in the makeup. Comes in various shades. The setting spray also helps set the makeup, and adds medicinal properties to the skin. The vitamins act as an aftershave and help relieve the feelings of a hot flash. Concealers The concealers add a full coverage effect to our sheer foundations. Just tap the product onto the skin with the fingertips, and you have a flawless finish. Each product is features Braille to help with shade selection. Lipsticks and lipglosses Out lipsticks and glosses are absolutely gorgeous. The glosses include a large dough foot applicator to make application seamless. Out lipsticks are easy to glide on. And, with a formula that lasts 8 hours, reapplication throughput the day is minimal. All products feature Braille to make shade selection easier. A booklet is included to describe each shade beautifully. Makeup Remover Our special makeup remover makes taking off a full face of makeup super easy. Just spritz your face 4 times and gently wash your face with a lukewarm washing towel. Final statement All products are cruelty free and FDA approved. You can read about the brands story at visionarycosmetics.com