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Love No Matter Your Ability: A Muscular Dystrophy Story

Cameron's Journey With Muscular Dystrophy

During my perfectly healthy pregnancy it never crossed my mind that our child would be born with special needs. Cameron would be smart like mom and athletic like dad. We had it all planned out, but quickly learned life doesn't always go according to plan.

Cameron was born with a rare form of congenital muscular dystrophy, so rare that we are yet to find the genetic fault. At first we grieved, cried, and asked "why us and why him". But it didn't take long for us to realize that wasn't fair to Cameron. We didn't lose anything, we lost a life we thought we were going to have, something that wasn't even ours to begin with.

Instead we gained a little person, Cameron, the only Cameron we've ever known. And he is exactly who he was supposed to be. He has taught us to be courageous, grateful, strong, and humble. He has helped us to become exactly who we are supposed to be. Because of all that we've learned and experienced over the last few months, we want people to know that people with disabilities aren't scary! Even though some individuals may look different than you or do things differently, we are ALL still people, no matter what our lives look like. Each and every person deserves love, that feels the same no matter what your ability.

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Just a mom of a medically complex child with Muscular Dystrophy trying to break down barriers and let the world know that special needs kids aren't scary.

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Nicole Schaworski

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Love No Matter Your Ability: A Muscular Dystrophy Story

During my perfectly healthy pregnancy it never crossed my mind that our child would be born with special needs. Cameron would be smart like
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