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My Rare Disease: Spinal Amyotrophy of Kugelberg Welander

החיים עם מחלת ניוון שרירים שדרתית של קוגלברג-וולנדר

שמי אאידה, אני בת 31 מקירגיסטאן שבאסיה. יש לי את מחלת ניוון שרירים שדרתית של קוגלברג-וולנדר. אובחנתי עם מחלה נדירה זו בגיל 10. מאז 2015 אני משתמשת בכיסא גלגלים. אני מומחית במניקור ומאפרת. עכשיו לומדת לעשות הרחבת ריסים. מאוד אוהבת אופנה ודברים מגניבים. רוצה להיות דוגמנית. אוהבת לטייל, לשחק שחמט, היפ הופ, ריקוד ואינטרנט. "התקווה איתך. פעלי ותהני!"

Living with Spinal Amyotrophy of Kugelberg Welander

My name is Aida. I am 31 years old. I am from Kyrgyzstan in Asia. I have Spinal Amyotrophy of Kugelberg Welander. I was diagnosed with this rare disease at the age of 10. Since 2015 I have been using a wheelchair. I am a master at giving manicures and being a make-up artist. Now I'm learning to do eyelash extensions. I really love fashion and cool things. I want to become a model. I like to travel, play chess, hip-hop, dance, and the Internet. 😂 "Hope with you. "Act and Enjoy!" ✊

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