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I am Stephanie. I am 22 years old, and I was born with muscular dystrophy merosin negative which is a muscle wasting disability. I can't walk, I can't do anything like clothing myself or cleaning myself, I can't brush my hair. I need care 24 hours a day. I also can't eat or drink anything by mouth. I need a feeding machine and a breathing machine at night when I sleep. My mouth is also always open because the muscles in my face prevent me from closing my mouth. I am trying to be a content creator on Twitch, YouTube, and TikTok


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Stephanie Louise Robson

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My Story

I am Stephanie. I am 22 years old, and I was born with muscular dystrophy merosin negative which is a muscle wasting disability. I can't wal