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Blog Posts (2127)
- Defeating barriers and stereotypes, living a fulfilling life with CP
Adapting life with Cerebral Palsy I’m Danny And im a para athlete, nursery worker and a disability advocate. I have hemiplegia on my left side. My Cerebral Palsy is quite mild and cannot be seen straight away unless you know what you’re looking for as most times I can hide it. Since I’ve worked on my Cerebral palsy from an early age I’m now able to do things most people thought I couldn’t, living with CP has its tough times but I work through them and adapt them where I need to. i have made an E book for adaptation s that can be made to help exercise with confidence. I’m also a new parent, I have a 6 month old little boy who I absolutely adore, being a parent with CP has many challenges but I am to show what it’s like through my experiences and give tips on how I adapt life with a baby to hopefully help others. I do social media and my own page showing my life with cerebral palsy and everyday tasks and ways to exercise and my journey to become a Paralympian. My aim is to help educate people about how people with CP live their lives and careers just like other people on the world We need to be shown more as there are many types of disabilities in the world and I believe we need to help others see this Follow me on Instagram @dan_hemihelp and TikTok (theCPDad) .
- Uncertainties, Unknowns, and Unstoppable Forces
My name is Danielle, and I was born with a congenital myopathy of unknown origin. Since the cause remains unidentified even after 30 years, it’s difficult to determine whether my other chronic conditions, such as dysautonomia, severe GI problems, and migraines, are related to it. I had muscle biopsies at 8 months and 5 years old, but both results were inconclusive. Around the age of 20, my geneticist physician recommended exome sequencing tests. Ultimately, the results raised more questions than answers. Now that technology has advanced, my 25-year-old muscle biopsy sample (which the pathology department luckily still had) will be sent out for whole genome and RNA sequencing testing. Perhaps I will get more answers this time, but living with a largely undiagnosed condition has taught me many lessons. One is the importance of writing my own story. Although knowledge is power, and I’m actively seeking a diagnosis, having nothing to "Google" has been freeing in some ways. It has helped me care less about what "society" thinks, because we only have one life, and it is unique to each of us. This realization has given me confidence in creating my "Daniellevates" content, a zest for traveling, and has made me more fearless in my advocacy endeavors. Surrendering to the unknown has allowed me to pursue what feels fulfilling to me. While my spiritual beliefs are deeply rooted in Christianity, I enjoy learning about other religions to find commonalities. I figure that if a belief is shared across different systems, it must hold some credibility. This "surrender to the unknown" ideology leaves room for my belief in God’s presence in my life, but it also ties into one of my favorite parables about the Taoist farmer. Choosing to remain neutral about my health and disability allows me to view each moment as an opportunity. In difficult times, it can be hard to find hope. You don’t always have to be hopeful, but staying curious is essential. You don’t need to believe that something good is around the corner, but it's important to be open to the possibility that it might be. Asking "why?" is sometimes seen negatively when it comes to faith or the disability experience. It’s not always easy to accept life’s circumstances without asking, "Why me?" I choose to accept that these "why me?" thoughts may arise from time to time, but not holding onto them is key. Moreover, "why me?" can be reframed as a positive question. Why am I in this situation right now? What am I supposed to learn about myself and my strengths in this moment? Who might need help that I am uniquely qualified to offer? Is this an opportunity for an unexpected detour in life? Life’s unstoppable forces can move us into lanes we never anticipated, but we are capable of making powerful moves ourselves. Remembering that power is crucial. ______________________________________________________ My "Daniellevates" content is all about elevating ideas about disability, chronic illness, and rare disease through humor, education, and adventures. You can find me on YouTube with long-form vlogs with accessibility reviews under the username "Daniellevates." I am also "Daniellevates" on TikTok, but on Instagram, I had to add an underscore before, so the username is "_Daniellevates." Thanks for reading!
- From Expensive Tailors to Your Screen – Fashion That Finally Fits
Why I started WearAble by Lega As a person with a disability, I’ve spent most of my life problem-solving—not just around mobility, but around something as basic as getting dressed. Throughout my career—whether as a Paralympic swimmer, entrepreneur, or Member of the European Parliament—I needed to look presentable and professional. But regular clothing simply didn’t fit. Not because of personal style or preference, but because I, like so many others, have a unique body that standard clothing was never designed for. So I did what I had to do: I turned to very expensive tailors. It was the only way I could get clothes that truly fit me—clothes that didn’t pinch, bunch, or hang in the wrong places because I use a wheelchair or have an unusual posture. It worked, but it wasn’t fair. And it certainly wasn’t accessible for most people. That’s what led me to create WearAble by Lega . WearAble is not just another clothing brand. It’s a global online platform where anyone with a disability or unique body shape can access tailor-made fashion directly from their computer or phone. Whether you’re seated all day, short-statured, have scoliosis, or simply don’t fit standard sizing, you deserve to wear clothes that actually fit you . This is not simply adaptive clothing. This is real fashion. Designed with dignity. Built for confidence. Tailored for you. I created WearAble so no one else would have to go through what I went through just to feel comfortable and seen. And I’d love to hear your thoughts—either here or on our Facebook page. Your feedback matters. Let’s change fashion. For real this time. — David Lega
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- Organizations | Yoocan
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- Home | Yoocan
Yoocan is a global community for people with disabilities and their families, discover empowering stories, find support, and connect with a world that understands you. Today's Highlights From Expensive Tailors to Your Screen – Fashion That Finally Fits David Lega Defeating barriers and stereotypes, living a fulfilling life with CP Danny Berney Latest Stories From Expensive Tailors to Your Screen – Fashion That Finally Fits Read More Defeating barriers and stereotypes, living a fulfilling life with CP Danny Berney Read More How mold nearly killed me Niki Fish Read More From Ventilator to Singing Again Read More Jireh's Journey Read More Finding Meaning in the Miserable Malalignment Kait Read More More Stories Access to Families 1 million Storytellers 2500 Organizations 1,100 Connections 600,000 Countries 105 Followers on Instagram 35,000 In Partnership with: Daily living and Mobility Daily living and Mobility Fashion Fashion Hobbies Hobbies Learning and Education Learning and Education Outdoor Activities Outdoor Activities Sports Fitness Dance Sports Fitness Dance Travel Travel Kids Kids Other Other Welcome to Yoocan Join our global community for people with disabilities and their families, discover empowering stories, find support, and connect with a world that understands you.
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