International Rett Syndrome Foundation

The International Rett Syndrome Foundation is a comprehensive worldwide organization dedicated to Rett Syndrome. The International Rett Syndrome Association disseminates timely, accurate, and objective information on Rett syndrome throughout the world to people who need information and resources and to researchers who can make a difference. This organization also provides books and materials, annual conferences, regional seminars, quarterly newsletters, a website with more than 2 billion hits last year, RettNet, a toll free help line, and a listening ear and caring heart so you know you are not alone.