top of page
User Name

A reason to smile today

"Try again. Fail again. Fail better"

I've always liked this quote from Samuel Beckett but I think I have only truly understood it after our son was diagnosed with Allan-Herndon-Dudley syndrome(MCT8). AHDS is a genetic disorder that brings severe motor and mental delay and has no cure. Receiving the news broke our hearts and shattered our lives into millions of pieces. We became two broken watches ticking time away in our own different worlds. The one who got us in sync again was none other than our son, Andreas-Rares.

Andreas-Rares

As it turns out, he’s the best teacher we’ve ever had…and the toughest :) He made us realize that limitations only exist if we create them, that the one who should decide what he can or cannot do is him and not the syndrome. That we should push limits, question the obvious, argue the impossible and learn to live again a life where anything is possible. Andreas-Rares is now three years old. He doesn’t speak, walk or sit unattended but that does not make his life or ours any less fulfilled. We celebrate every small step forward with the same enthusiasm as conquering Everest because those moments are so very rare and so incredibly precious. He works hard for each and every one of those moments. He has two therapies per day plus “homework” so it’s usually a full schedule but we never forget to laugh and play, even a bit every day.

Follow our journey

If you would like to follow Andreas-Rares’ progress please visit his site www.andreas-rares.eu or his Facebook page https://www.facebook.com/Andreas-Rares-968947029806421/

4 views0 comments

Comments


Collapsible text is perfect for longer content like paragraphs and descriptions. It’s a great way to give people more information while keeping your layout clean. Link your text to anything, including an external website or a different page. You can set your text box to expand and collapse when people click, so they can read more or less info.

Country:

Email:

<Email>

Author:

<Athors name>

More stories by this Author

Beneath The Tracksuit

Andreea Lichi

A Mug Designed with Everyone in Mind

Andreea Lichi

You Only Get One Life

Andreea Lichi

Finding Strength

Andreea Lichi

Voiceitt

Andreea Lichi

My story

Andreea Lichi

My HSCT Story for MS

Andreea Lichi

My Wheelchair was stolen by passengers

Andreea Lichi

Champion in My Own Arena

Andreea Lichi

My story

Andreea Lichi

12 hours that changed my life

Andreea Lichi

My Chronic Illness Story

Andreea Lichi

That bunny is just like me!

Andreea Lichi

Finding My Passion

Andreea Lichi

Start walking by mylself

Andreea Lichi

Belinda’s Accomplishments

Andreea Lichi

#StandUpOrDieTrying

Andreea Lichi

MD- My Determination

Andreea Lichi

Motivational

Andreea Lichi

C4 Quad Rolling Through Life

Andreea Lichi

Related Service Provider

I-WHEEL
Apache Adaptive Solutions
People's Parking Limited