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Journey Update - Madduxstrong

An Update from Maddux's Journey, Shared back in 2016

Original story: Little Survivor

The last time we shared about our son Maddux’s journey, he was a vibrant 2-year-old who had undergone 10 surgeries at that time in his brief life. Today, at 10 years old, Maddux has experienced nearly 20 surgeries overall – still, almost all brain surgeries to address his hydrocephalus – and at 3 years old, in addition to his spina bifida, achondroplasia, and hydrocephalus diagnoses, he received another one, Epilepsy, after experiencing two focal seizures. Nevertheless, he is a strong soul who continues to defy the odds!


These days, you can find Maddux on the ball field where he is currently entering his 4th season as a baseball player for our local Little League’s Challenger Division. A fan of all sports, Maddux loves playing, watching, and even attending live sporting events any chance he gets! Last summer, he even had the opportunity to participate in his first Angel City Games in Los Angeles, where he tried out and discovered a love for wheelchair basketball. He even met Paralympic Gold Medalists, Ezra Frech and Matt Scott (Matt was also born with spina bifida like Maddux!).


Maddux continues to have twice-weekly physical and occupational therapies to help him build muscle tone and develop the necessary skills needed to be independent and to continue to thrive in everyday life. He lives life with a positive and upbeat energy and outlook. He has an incredible support system at school, at home, and in the community who are all rooting for him!


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