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Living Life with Chronic Illness: Life with EDS

Getting to know Empowering Ellen and her life with EDS

Living with a chronic illness is consuming and exhausting. Chronic illness effects a number of children in the world and is grossly misunderstood. Ellen is a 12 year old who is learning to live with Ehlers Danlos Syndrome, which ultimately has also caused her to suffer from Dysautanomia, POTS, Chronic Pseudo Intestinal Obstruction with a Cecostomy, anxiety disorder, sleep disorder, and chronic fatigue.

While the rest of the world moves outside... Ellen spends her days locked within her body and mind... with pain and exhaustion. Living with EDS (Ehlers Danlos Syndrome) has challenged her to see life in a different way than most 12 year olds. She has spent her life in and out of hospitals... having more pokes, procedures and surg