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My Chronic Illness Story

My Daily Life

In November of 2020, I had Covid. It wasn't mild, and it was definitely not fun. I told myself that going to the hospital was not an option. I should have gone. For almost two months, I couldn't breathe or speak without coughing. It was such a hard and terrifying experience. Fast forward to now: I've been diagnosed with Dysautonomia Long Haul COVID-19 due to having it back in 2020. I've been suffering from extreme amounts of stomach pain, nausea, insomnia, and sometimes breathing is still hard. I had no idea what was wrong. I saw so many specialists and even went to the Mayo Clinic. After months and months of tests, hospital visits, and medications, I finally got an answer to what was wrong from the Watson Clinic. It definitely helped knowing, but not having a cure was crushing. I had already been diagnosed with epilepsy when I was 13, fibromyalgia when I was 28, PCOS when I was 16, and suffer from extreme migraines. This wasn't something I wanted to hear. A new problem I have to face and adjust my life to. However, I stayed as positive as possible. After almost a year of being on long-term medical leave, I got to go back to work. It's still a daily struggle, but the little wins help. It's definitely hard when people look at you and think you're okay and like to judge. I know in this community everyone understands exactly what I'm going through. I'm taking it day by day, and not letting my chronic illness win. I go out as much as possible and rest when I need it. I'm thankful I have a support system that understands when I cancel and when I need help. They have been with me on a journey that is not the best, but they keep me going. We are strong warriors. Smile bright and stay positive 💜💜


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