top of page
User Name

My Wheely Lovely Life

About me

Hi! My name is Amanda! @amandasteijlen on Instagram! I am 27 years old and live in Tampa, Florida.

I have a super sweet husband and two golden doodles. We travel the US in our RV.

I share my life journey with a chronic illness and generalized anxiety disorder on Instagram and on my website www.amandasteijlen.com.

I founded a nonprofit organization that supports the disabled community and am in the process of becoming a rehabilitation and mental health counselor!

Diagnosis

My journey all began when I was about 8 years old. My parents started to realize that my "tippy-toe princess walk" was not exactly what they thought it was. I started to lose the ability to run, climb stairs, get up off the floor, etc. After many many doctors and an incorrect diagnosis, at the age of 10, I was finally diagnosed with Limb Girdle Muscular Dystrophy Type 2A. This disorder is caused by the inability of my body to create a protein that builds muscle. It is progressive and over time causes the degradation of muscle.

Chronic Illness & Mental Health Advocacy

I am a spokesperson and social media advocate that brings awareness to chronic illness and mental health!

I am a certified meditation instructor and am also on my way to being able to provide mental health counseling. I plan to specialize in those with chronic illnesses.

Wheely Big Dreams Nonprofit Organization

I founded a nonprofit organization that provides adaptive devices and support for those with physical disabilities.

Over the years I have been blessed with support from my family for all the costly devices that I needed that were not covered by insurance. I am so excited to be able to change the lives of others by giving them these live changing items!

Without the assistance to get a wheelchair-accessible van, power wheel, offroad wheelchair, etc. my life would not be nearly the same.

Please visit our websitenbsp;to donate! You can make such a huge difference in someone's life!

4 views0 comments

Comentários


Collapsible text is perfect for longer content like paragraphs and descriptions. It’s a great way to give people more information while keeping your layout clean. Link your text to anything, including an external website or a different page. You can set your text box to expand and collapse when people click, so they can read more or less info.

Country:

Author:

Amanda Steijlen

More stories by this Author

Life is beautiful and the power of people is unstoppable!

Andreea Lichi

Read More

Accomplishing my dreams with cp

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Related Service Provider

I-WHEEL
Apache Adaptive Solutions
People's Parking Limited
Living Well at Home Ltd
iansyst Ltd
Tapooz Travel

Realated Products

Skil-Care 3 Foot x 4 Foot Sensory Foam Crash Pad

The Original Toy Company Fold & Go Trampoline

Fun & Function - Fidget Key Chain Balls

Classroom Weighted Focus Kit

Green Chewy Tube (Knobbly)

Red Chewy Tube

More Products
Combot
Userway

Daily living and Mobility

Learning and Education

Travel

Kids

My Wheely Lovely Life

Hi! My name is Amanda! @amandasteijlen on Instagram! I am 27 years old and live in Tampa, Florida. I have a super sweet husband and two gold