Mar 10, 2022

PNES and Me

My story

I used to dance 30 hours a week on a professional level. Now I’m barely walking. What happened? PNES did. PNES are Psychogenic Non Epileptic Seizures. This means (for me) that I’m awake during my seizures and that there is no epileptic activity in the brain detectable. It’s very scary really. Having zero control over your body whilst you can see everything that’s happening. Sometimes I can talk, sometimes only form words or just sounds. I have a lovely service dog who goes everywhere with me and helps me through my seizures next to amazing friends and family who always help me during seizures. I also have to take a lot of medication to keep my seizures at a minimum. Next to PNES I have many mental health issues and chronic illness. These combined probably led to PNES in the first place. PNES has forced me to start my life over and over again. To keep getting back up every time it knocks me down is so hard, but at the end of the day we always keep fighting.

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