Nov 25, 2018

Shining Through with Charcot-Marie-Tooth Disease

Meet Anna

After a nearly three year odyssey of specialist appointments and medical testing, Anna was diagnosed with Charcot-Marie-Tooth Disease at age four. Her symptoms are progressive and similar to those of Muscular Dystrophy.

Living with a progressive neuromuscular disease has not dampened Anna's positivity. This little girl's spirit shines through with love, kindness, and humor. Everywhere she goes - school, therapy appointments, doctors' offices, church, playgrounds, etc. - Anna meets friends and brightens peoples' days.

Of course, as her mother, it is absolutely difficult to watch Anna lose strength as her disease takes hold. Our family's goal for her is independence and we work toward that each day.

We'd love to connect with other families with young CMT patients.

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