Spinal muscle atrophy is not a barrier to living a great life

Oct 28, 2022

1 min read

My life so far

Hi! My name is Maxwell Mcknight @maxwellmnightand, and I suffer from a rare genetic condition called Spinal Muscular Atrophy. It’s a condition that affects signals from the brain to the muscles. This means I have muscle weakness in my whole body, meaning I’m in a power chair. In 2017 I had spinal fusion surgery due to my scoliosis, which was caused by my muscle weakness. Although SMA (spinal muscular atrophy) brings many challenges along with it, it also allows me to see and explore the world differently. During my life so far, I’ve achieved many things, like starting a small business at the age of 16 and maintaining a relationship with my partner. More recently, I have been studying at university looking to get my business management degree. I believe I can do anything and don’t take no for an answer. Once I know what I want to do, I hyper-focus on it until it’s done. I think this personality type is instilled in many people with my condition- as it’s a way to take control and own life. So if you would like to follow my journey in conquering or want to learn more about my condition, please visit my page. Alternatively, visit the charity page @sma_uk

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