The Persistence of Happiness
Since middle school I’ve struggled with Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS /ME), Post Orthostatic Tachycardia Syndrome (POTS), and multiple chemical/metal sensitivities likely brought on by a combination of 13 metal fillings, metal braces, and a virus at the end of 5th grade that permanently sapped my energy. Despite, or more likely because of my chronic deficit of resources, I have made a point of truly enjoying the moments when I’m well enough to function and when I’m not, I find ways to make the best of those times too. One of my happiest memories growing up was my last day of middle school when my friends all rollerbladed to my house from school, pushing me into a wheelchair because I was too weak to walk. I have had a lot of invaluable moments with amazing, supportive friends since then, but that image always reminds me how committed I have been to navigating ways to sustain my happiness. Since my initial diagnosis, I have added Neurosarcoidosis, Optic Neuritis, Rheumatoid Arthritis, and Avascular Necrosis to my chronic illness roster. Many days I don’t have the energy or I’m in too much pain to leave the house, so I started an Instagram account, #sickandstylish, where I could create and share positivity and happiness through fun and comfortable styles and funny thoughts, and provide information about my illnesses to help others struggling. I hope my outreach help brighten someone else’s day whether or not they are dealing with illness. We could all use a boost🌞. #chronicillness #sickandstylish#chronicfatiguesyndrome #CFS #myalgicencephalomyelitis #sarcoidosis #neurosarcoidosis #immunocompromised #opticneuritis #avascularnecrosis #recuperation #persistence #happiness #positivity #patience #healing #styleheals
