top of page
User Name

We Can Do Hard Things: How I Live with an Invisible Illness

My Story: life with an Invisible Illness

When I was 15, I got a bacterial infection in my ear and skull. After eight weeks of IV antibiotics, my medical team discovered that I had suffered ototoxicity -- a fancy word for poison -- and was left without a vestibular (balance) system with no hope for a cure, I had to relearn how to walk, track when I read and write in a straight line. My vision now bounces constantly -- kind of like an amusement park ride. This invisible disability is known as oscillopsia. What a tongue-twister, right? Since then, I've been diagnosed with chronic, daily migraine and recovered from 14 surgeries. In a plot twist, I was also recently diagnosed with SUNCT Syndrome -- a rare neurological condition which causes me to have up to 200 mini, electrical-like headaches each day. It's about as fun as it sounds.

We Are Worthy

Living with an invisible disability and two chronic pain syndromes has completely restructured my life. I've learned how to prioritize rest and be nimble with my time. I don't think anyone is ever prepared for a chronically ill life -- we don't choose it, it chooses us. But a constant roulette wheel of illness has shown me the depths of living with intent. Life is messy and hard and insurmountably tough sometimes. But we only get one shot at it, and being sick doesn't disqualify me (or you!) from the game. We're worthy of joy and goodness and brightness.

1 view0 comments

Comentarios


Kat is a writer, chronic illness advocate and children's book author whose debut picture book SURGERY ON SUNDAY will be published in 2020. Her writing has appeared in various print and digital outlets.

Country:

Author:

Kat Harrison

More stories by this Author

Life is beautiful and the power of people is unstoppable!

Andreea Lichi

Read More

Accomplishing my dreams with cp

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Healing is happening- what is wrong with me?

Andreea Lichi

Read More

Related Service Provider

I-WHEEL
Apache Adaptive Solutions
People's Parking Limited
Living Well at Home Ltd
iansyst Ltd
Tower of David Museum

Realated Products

Skil-Care 3 Foot x 4 Foot Sensory Foam Crash Pad

Green Chewy Tube (Knobbly)

Red Chewy Tube

Chewy Tubes - Yellow

Chewnoodle Blue Bumpy

Bumpy Chewnoodle - Red

More Products
Combot
Userway

Daily living and Mobility

We Can Do Hard Things: How I Live with an Invisible Illness

When I was 15, I got a bacterial infection in my ear and skull. After eight weeks of IV antibiotics, my medical team discovered that I had s